handmeafish
Well-Known Member
So for those that don't know, I have Crohn's disease. Its this really crappy disease where my immune system attacks my intestine. Its very painful and it causes very embarassing symptoms.
For pretty much all of 2010 I was on a terrible drug called Prednisone. The most unfriendly side effects include insomnia (I'd sleep on average 6 hours ever 4 days) mood swings (I tried to stab my father with a fork because he interrupted me) and weight gain (I gained 60lbs that year) It took me all of 2011 to loose the weight and get back to normal.
I've been feeling really good for about the last month. I'm back to my pre-prednisone weight and for the first time in years my crohn's actually feels under control.
So thats the background.. so you can understand a bit better why i'm upset.
In November, I got these funny spots on my arms. I now have 3 on my arms, 2 on my back 6 on my scalp and 1 on my leg... the derm doesn't seem to be sure what they are, but he thinks it could be "a weird looking psorisis or really bad exczma or Erythema Multiforme... all of which should be fixed by Prednisone. So we tried the prednisone, but it didn't work. I didn't sleep more than 18 hours in 2 weeks... for pretty much nothing.
Untitled by handmeafish, on Flickr
Untitled by handmeafish, on Flickr
Like 2 days ago, I had an itchy spot on my face. It felt like dry skin, so I treated it like that.
Last night it looked like this.
Untitled by handmeafish, on Flickr
But when I woke up it was like twice the size.
Untitled by handmeafish, on Flickr
So I called the derm, and got a last minute appointment. He diagnosed the spot on my chin as " sweets syndrome" which he thinks will clear up in a few weeks. He didn't really explain much, so I googled it when I got home...
Apparently this is what I have to look forward too over the next few weeks.
[spoil:2wsuhxu3]
[/spoil:2wsuhxu3]
So, I finally get to feel good for a while... and this pops up.
I finally get to feel pretty for a while, and now I get to have a giant boil on my face, which may erupt and get crusty and nasty... Also, who knows how much longer this thing will grow...
So yeah. I'm kind of sulking right now... but I do feel a bit better now. I know tis not the end of the world.. I'm not dying... and I'm more than just my face. But I feel like nothing ever gets to go right for me. I really like this boy... and I've nearly worked up the courage to ask him on a date. (I have anxiety issues too, so doing things out of my box is very difficult) and now I think all I'll be able to think about is this giant thing on my face, whether he notices it or not, I'll be focused on it, and I'll probably chicken out. And if it crawls up my chin too much more I wont be able to play my saxophone, which is my only release right now.
I guess thanks for listening... I always know my ratshack buds are willing to listen, even when it seems no one else will.
For pretty much all of 2010 I was on a terrible drug called Prednisone. The most unfriendly side effects include insomnia (I'd sleep on average 6 hours ever 4 days) mood swings (I tried to stab my father with a fork because he interrupted me) and weight gain (I gained 60lbs that year) It took me all of 2011 to loose the weight and get back to normal.
I've been feeling really good for about the last month. I'm back to my pre-prednisone weight and for the first time in years my crohn's actually feels under control.
So thats the background.. so you can understand a bit better why i'm upset.
In November, I got these funny spots on my arms. I now have 3 on my arms, 2 on my back 6 on my scalp and 1 on my leg... the derm doesn't seem to be sure what they are, but he thinks it could be "a weird looking psorisis or really bad exczma or Erythema Multiforme... all of which should be fixed by Prednisone. So we tried the prednisone, but it didn't work. I didn't sleep more than 18 hours in 2 weeks... for pretty much nothing.
Untitled by handmeafish, on Flickr
Untitled by handmeafish, on Flickr
Like 2 days ago, I had an itchy spot on my face. It felt like dry skin, so I treated it like that.
Last night it looked like this.
Untitled by handmeafish, on Flickr
But when I woke up it was like twice the size.
Untitled by handmeafish, on Flickr
So I called the derm, and got a last minute appointment. He diagnosed the spot on my chin as " sweets syndrome" which he thinks will clear up in a few weeks. He didn't really explain much, so I googled it when I got home...
Apparently this is what I have to look forward too over the next few weeks.
[spoil:2wsuhxu3]
So, I finally get to feel good for a while... and this pops up.
I finally get to feel pretty for a while, and now I get to have a giant boil on my face, which may erupt and get crusty and nasty... Also, who knows how much longer this thing will grow...
So yeah. I'm kind of sulking right now... but I do feel a bit better now. I know tis not the end of the world.. I'm not dying... and I'm more than just my face. But I feel like nothing ever gets to go right for me. I really like this boy... and I've nearly worked up the courage to ask him on a date. (I have anxiety issues too, so doing things out of my box is very difficult) and now I think all I'll be able to think about is this giant thing on my face, whether he notices it or not, I'll be focused on it, and I'll probably chicken out. And if it crawls up my chin too much more I wont be able to play my saxophone, which is my only release right now.
I guess thanks for listening... I always know my ratshack buds are willing to listen, even when it seems no one else will.